Legislative Agenda

Legislative Efforts to Improve Kidney Care

Through our work with Congress, KCP advocates for policies that improve the coordination of care and the understanding of chronic kidney disease, lower the barriers that block patients from accessing and choosing treatments, expand and enhance research efforts, and that reform the economics underlying the kidney care landscape so that financial incentives are aligned with patient goals.

KCP supports the following legislative efforts:

The Chronic Kidney Disease Improvement in Research & Treatment Act of 2019 (S.1676 and H.R. 3912)

If passed, this legislation will help millions of individuals living with chronic kidney disease and ESRD achieve the quality of life they want and deserve. Learn more.

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (S. 3353 and H.R. 5534)

This legislation, introduced in the House in Dec. 2019 and in the Senate in Feb. 2020, would extend Medicare coverage of immunosuppressive drugs for the life of a kidney transplant, beyond the 36-month post-transplant cut-off currently in place. Learn more.

House Letter to CMS Regarding the ESRD Treatment Choices (ETC) Mandatory Demonstration (Oct. 17, 2019)

Seventy-three bipartisan members of the House of Representatives submitted a letter to HHS Secretary Azar and CMS Administrator Verma urging the agency to address several serious design issues before implementing the proposed ESRD Treatment Choices (ETC) mandatory demonstration. Read the letter here.

Letter to CMS Regarding the ESRD Prospective Payment System (April 19, 2019)

Sens. Blunt and Cardin wrote to HHS Secretary Azar and CMS
Administrator Verma requesting they take administrative actions to ensure the long-term stability of the Medicare End Stage Renal Disease program, including addressing the problems in the drug designation policy related to functional category drugs. The letter also recommends that CMS better align requirements under its ESRD quality improvement initiatives. Read the letter here.

House Dear Colleague Letter on KidneyX Appropriations (March 28, 2019)

Reps. Suzan DelBene (D-WA), Brian Babin (R-TX), Terri Sewell (D-AL), Larry Bucshon (R-IN), and 57 co-signers submitted a letter to appropriators requesting $25 million in matching funds for KidneyX. Read the letter here.

Living Donor Protection Act of 2019 (H.R. 1224)

This legislation, introduced on Feb. 14, 2019, would protect living organ donors and promote organ donation by protecting living organ donors and removing barriers to donation. Learn more.